Target group

TIRCON aims to make an impact on the NBIA community at the international level.  This includes doctors and clinicians involved in NBIA care and treatment, basic scientists researching new therapies, patient advocacy groups that provide support to families suffering from this disease, and research companies that can develop the drugs to treat NBIA.

TIRCON connects these groups together to create a comprehensive network, with the end goal of

  • providing a virtual community where NBIA clinicians can be connected with patients and provide telemedicine support
  • developing a joint education programme to teach young, as well as experienced medical professionals about NBIA
  • building an interface with key stakeholders in the national health care systems

As a result, TIRCON will provide better access to NBIA diagnosis and therapy and concurrently contribute to a harmonization of care standards.

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